http://www.jsrdf.org/
Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns and cognitive impairment. These issues are due to abnormal brain development, resulting in decreased size of the cerebellar vermis and other brain abnormalities that appear as the “molar tooth sign” on a brain MRI. Although rare, several hundred individuals with Joubert Syndrome have been reported in the medical literature. Mutations in at least 10 genes cause Joubert Syndrome, accounting for 50% of patients. Subsets of individuals with Joubert Syndrome can also have polydactyly (extra fingers or toes), as well as retinal, kidney and liver disease requiring medical intervention.
The Joubert Syndrome and Related Disorders Foundation ( JSRDF) is an international network of families affected by Joubert Syndrome or related disorders. The JSRDF coordinates programs, including conferences, to connect families with each other and top medical professionals in the field; collaborates on research projects pertaining to Joubert Syndrome and related disorders; coordinates fundraising and awareness events; encourages government/lawmakers to support funding and research; and works with scientific and other professional advisors to assist families affected by Joubert Syndrome and related disorders. |
The Brain Trauma Foundation
www.braintrauma.org
The mission of The Brain Trauma Foundation (BTF) is to improve the outcome of Traumatic Brain Injury (TBI) patients nationwide. According to BTF, brain injuries are most often caused by motor vehicle crashes, sports injuries, or even simple falls on the playground, at work or in the home. One and a half million people sustain a Traumatic Brain Injury every year in the U.S. – that’s eight times the number of people diagnosed with breast cancer, and 34 times the number of new cases of HIV/AIDS. |
The Maritime Aquarium
http://www.maritimeaquarium.org/home.html
Maclaren is a perennial supporter of the Maritime Aquarium in Norwalk, CT. With US offices in the Norwalk area Maclaren believes that the maritime aquarium is an indispensible resource for local families. One way Maclaren supports the aquarium is through donating a fleet of buggies for use of families with small children visiting the aquarium.
The Maritime Aquarium at Norwalk inspires people of all ages to appreciate Long Island Sound and protect it for future generations.A vibrant and entertaining learning environment, the maritime Aquarium achieves this goal through living exhibits, marine science and environmental education.
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Baby Buggy
www.babybuggy.org
Baby Buggy is a non-profit organisation dedicated to providing New York City's families in need with essential equipment, clothing, and products for their infants and young children. Today, over 500,000 children live in poverty in NYC. Baby Buggy´s goal is to help them access the essentials they need to ensure their safety and well-being. Since 2001, Baby Buggy has delivered over a million essential items to thousands of families through its network of over 80 qualified social service partners. |
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http://www.baltimoremommies.com/
BaltimoreMommies.com is part of The Mommies Network, were founded in April 2007 and we currently have over 400 members spanning across Baltimore, Howard, Eastern Carroll and Northern Anne Arundel Counties. We provide a safe, secure, FREE place for mothers to find support and encouragement from other mothers. Our members gain camaraderie and support through an online forum that is available 24 hours a day and also through many weekly & monthly events where mothers can meet face-to-face and develop real friendships. We are also working on helping our neighbors through organized fundraisers and charity events, specifically those focused on providing for mothers and their children.
BaltimoreMommies is more than just a community of moms. It is moms in and for the community. Our members encompass all aspects of mothers, from all backgrounds, whether working or at home. In other words, we are a reflection of mothers in the real world. BaltimoreMommies is a connecting force, helping us each to make a difference in our own lives, in our families and in the places we call home.
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Cool Culture
http://www.coolculture.org/
Maclaren is a supporter of Cool Culture, a NY based organization that connects low-income families and cultural institutions, empowering parents and guardians to take advantage of these unique educational resources.
Maclaren recently supported Cool Culture’s Museum Mile Festival, Cool Culture’s largest family-friendly event sharing the best of New York’s art and cultural muse sums with low income families.
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Wheelchairs for Iraqi Kids
http://www.wheelchairsforiraqikids.com/index.html
Maclaren was inspired by the story of Brad Blauser’s mission to provide high quality pediatric wheelchairs to Iraqi children with disabilities. Maclaren supports Wheelchairs for Iraqi Kids through donation of the Maclaren Major Elite special needs stroller.
In August of 2005, Wheelchairs for Iraqi Kids was created to meet the needs for children with disabilities in Northern Iraq at the request of LTC David Brown. He and his soldiers had been in the city of Mosul and observed as children pulled themselves along the ground because their legs simply did not work. Since that time, over 600 high quality pediatric wheelchairs have been delivered to these children by soldiers serving in Iraq.
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Time for Lyme, Inc.
www.timeforlyme.org
Time For Lyme is an organisation dedicated to eliminating the devastating effects of Lyme disease and other tick-borne illness. Its mission is to prevent the spread of disease, develop definitive diagnostic tools and effective treatments, and to ultimately find a cure for tick-borne illness by supporting research, education, and the acquisition and dissemination of information. In addition, it acts as advocates for Lyme disease sufferers and their families through support of legislative reform on the federal, state and local levels. |
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